Pretty well sums it up. Lots of getting worse. I don't like that. Seeing the doc at the end of the month. Don't think there will be anything to do about any of it, but who knows...
Just venting this time, no humor, sorry...
This blog is about FibroMyalgia, and the particularly strange ways it affects my life. Although it can be a royal pain (oh, no, puns already?), Fibro can also be pretty interesting. And yes, I feel strongly that a sense of humor is the best medicine, particularly in my case. So, come along for the ride, I'll post some of the more interesting neural miscommunications as they come up. If I don't post for a while, maybe I'm feeling normal -- whatever that is...
Tuesday, September 10, 2013
Thursday, August 29, 2013
Open House...
...at school tonight. I was enjoying it, but about three-quarters of the way through the event, I started breaking multiple bones in my left ankle and lower leg. As long as I was talking with kiddos and parents, I could ignore the breaking, but as soon as I was alone again, BAM! I've been home for a couple of hours, and still, multiple breaks. No fun...
Sunday, August 25, 2013
Chain Reaction
So, back to the school schedule... which means my chronic fatigue syndrome is having a field day/week/month. Which, of course, messes with the neural misconnections of my life. Which in turn, of course, raises and spikes pain levels. Have any of you ever seen the domino scene in 'Robots'?
But I do have to say, I am enjoying the new school. Lots to do, lots to learn, lots to catch up on... but in a healthy environment. So hopefully that will translate to easier, more restful sleep. Which will lead to less neural misconnects. Which in turn will even out many of the flare-ups. In time...
But I do have to say, I am enjoying the new school. Lots to do, lots to learn, lots to catch up on... but in a healthy environment. So hopefully that will translate to easier, more restful sleep. Which will lead to less neural misconnects. Which in turn will even out many of the flare-ups. In time...
Monday, August 19, 2013
Made it Through Summer...
...and am back to school. That should be a good thing this time around. We'll see how the body reacts to being back on a routine.
Thursday, August 1, 2013
5-3/4 out of 6
That's where I am right now... on the pain scale. 6 is completely incapacitated and/or dead. 3-1/2 to 4 is pretty normal for me. 5 happens pretty frequently. 2 happens rarely.
I suppose to be fair I am closer to 5-5/8, except I don't deal in eighths. I can still function with a keyboard. I think I can proofread. I can open the refrigerator, and stare at several things that I can't prepare or open, and a few I can. But walking is pure agony. Sitting, not much better. Standing still works for a few seconds. Reclining works for several minutes, but then my feet start throbbing and my back goes on revolt. Oh, and any variation of holding up my head is torturous, but putting it on/against anything accentuates the pain.
So, am I missing something obvious here? Is there something I could be doing that does not hurt? Bleh...
I suppose to be fair I am closer to 5-5/8, except I don't deal in eighths. I can still function with a keyboard. I think I can proofread. I can open the refrigerator, and stare at several things that I can't prepare or open, and a few I can. But walking is pure agony. Sitting, not much better. Standing still works for a few seconds. Reclining works for several minutes, but then my feet start throbbing and my back goes on revolt. Oh, and any variation of holding up my head is torturous, but putting it on/against anything accentuates the pain.
So, am I missing something obvious here? Is there something I could be doing that does not hurt? Bleh...
Thursday, July 25, 2013
Aaarrrrgghhh....
Was having a pretty good day, physically. Even taught a ballet section for one of the medleys I choreographed for summer camp. And just in the last half hour, I started having major seizures, and they won't stop! Both legs and the right arm. Thirty minutes is a good chunk longer than they usually last. And unfortunately, they don't seem to burn up any fat cells...
Saturday, July 6, 2013
Nothing Much...
Just the same. Very little sleep, lots of pain. Just felt like I should enter something in the blog so it doesn't feel ignored...
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