Well, yeah...

New experience. Had both kinds of seizure at the same time, both in the right arm. That was Sunday... or maybe Saturday. In the grocery store. Not amusing.

Then I had one of my 'everything hardening up, curling up' types of seizures that my right arm is so fond of, except it was both upper legs instead. That was Tuesday. In the classroom. Not amusing.

So, taking bets here. Am I going to have an unamusing new experience Thursday, or Friday? And where will it be? I'm placing my bet on Colonel Mustard, in the Conservatory, with the Wrench.

Complaint Form...

Yeah, nothing funny about today's post. Sorry about that. I just need to gripe.

The curl-up tension seizure things are getting worse. Having more of them, some of which are more intense. No medical help, grrrr... 

That's really all I've got here. Needed to complain. Done. Thanks.

Fibro is Evil

So, the other day I started driving home, and then my arm broke, like shattered broke, not snapped broke. It was incredibly painful, and took everything I could do just to keep the car moving safely -- while cussing up a storm.

Ten minutes later, it was just sore.

So within 15 minutes, I was cruising along at a comfy 3 out of 6 on the pain scale, zoomed up to about 5-3/4, and ended at a reasonable 4-1/4. 

E-vil.

Something New

Experiencing something new, and not too keen on it.

From mid-afternoon on, I've had bones breaking, nothing unique there. But after they break, today, they've been turning into something like molten metal. They become liquid, but very thick liquid, and hot. Ribs have melted together. My knees don't quite fit together properly any more because the bones have reshaped themselves, post liquefaction.  

It's a really strange sensation. I am able to appreciate it as something bizarre, but I'm failing to see the humor in it, and really don't see the need to experience it any more. It is allowed to cease for the night, and really does not have to revisit at any time soon, say, the next 75 or so years...

Part Two...

So, I tried going to bed again, but could not sleep. So I did some Sudoku puzzles. I finished the third one, and then realized that most of my broken bones were no longer broken. I almost felt like it was just an allergy or a cold!

I use the 6 point pain scale. I know there are more people who use the ten pointer, but I relate better to the 6. 0 is no pain at all. 2-3 is obviously present pain, but not really a distraction beyond that pain. 4-4.75 is a serious distraction, but I can still function. 5 is where function is compromised. 6 is curled up in a ball on the floor unable to do anything. That all make sense to me. For some reason 0-10 is too much variance.

Today? 5.75 almost the whole day. Now? 5.25 probably, which feels just fine after this day!

Not a Funny One.

woosh... 

Highly non-functional today. I either came across something that I was allergic to last night, or a strange cold overtook me. I was fine most of the day -- tired from work, sore from work, but that's all. Then with about 20 minutes I went into head and chest congestion, sore throat and throbbing headache. And of course lots of pain. 

Woke up with all of those things plus about 20 broken bones. Plus my left leg is about four inches longer than the right one. I managed to feed the dogs and let them out, and then I gave up and went back to bed. Tried several more times to get up, but there was just not enough body working to make it worthwhile. I finally got myself dressed; Kodiak knew what condition I was in, and tried to help. Tried to go shopping, but only made it as far as Taco Bell. I don't think that the cashier in the drive-thru knew that I'd been crying the whole way there. Ordered three value items, knowing that I had not eaten a thing so far, and it was close to 3pm. I had to force myself to finish the second item. The third is going in the fridge. 

And I am going back to bed.

Marching Forward

Well, I posted something in March, and it isn't here.

It was about the joys of driving to work with non-functional legs. And making it there just fine. And figuring out how to walk through the parking lot and into the building. And making it there just fine. And no one noticing...

When it happened in January, I thought, wow, I'm good at hiding this. When it happened a second time, in March, I got depressed about it. Am I even noticed at school? Do I have so little impact that people don't even see how hard I have to work just to walk?

Well, then I found out I was getting displaced. Again. And I went through about 36 hours of moping, and then turned myself around. I realized that it's time for me to do something else, I just had to open myself up to the possibilities so that I would find that new path. And I did! New school, new philosophy of education, new responsibilities -- all for the better!

And then I stopped posting in here. Oops. My bad.

GCS -- Gyllenhaal Chili's Syndrome

One of my least favorite conditions to be in, GCS. Yes, Gyllenhaal Chili's Syndrome has me under its control again.

What is GCS, you ask? Brokeback Baby Back Ribs. Every rib (or a large majority of them) feels broken. Breathing, no fun. The only position that is remotely comfortable involves being on my back, with the upper back slightly curved up onto a couple of pillows. Unfortunately, I am a side sleeper. So, I can stay awake but make the pain mellower, or I can try to sleep and hurt. 

Decisions, decisions...

Am I Improving? And if So, at What?

Yeah, trick question...

It was yet another day of not knowing how to operate my legs when I woke up. No biggie, that happens 3-4 days per week. Still made it to the bathroom and back. Still got dressed. Still made it down the stairs. Got the dogs fed and let them out. Packed my lunch, got both dogs settled in for their day, got out to the garage -- legs still not obeying commands. 

So, what to do? Well, duh, drive to work. And I did. I had to manually operate the right leg a few times to get the gas pedal to react, but I did, whatever. Got to the parking lot at work. Could not for the life of me figure out how to get my legs out of the Jeep on their own, so the arms had to lift them, okay. Walked over the icy patches of the lot, still confused about what commands would make the legs function, sure. 

Did any of the kids notice how much of the day was spent leaning on things while I walked around the classroom? I don't think so. One coworker gave a quick reaction to the way that I lifted myself down to the chair at a meeting, but I guess it wasn't even enough of a concern to ask how I was doing. 

Only had to lift the right leg into the Jeep; the left one was doing it all by itself! Woo-hoo! And the right one was cool with driving. Resisted the temptation to lift it out when I was safely parked in the garage, made that bad boy lift itself, and the second try worked. 

An entire work day with the legs not working properly, and no one noticed, other than possibly the one coworker? I must gots mad skillz...