Well, school has been... interesting. Seizures are definitely on an uptick. They went crazy during standardized testing. Chronic Fatigue Syndrome has also been extra challenging. And, of course, there's this pandemic thing...
This blog is about FibroMyalgia, and the particularly strange ways it affects my life. Although it can be a royal pain (oh, no, puns already?), Fibro can also be pretty interesting. And yes, I feel strongly that a sense of humor is the best medicine, particularly in my case. So, come along for the ride, I'll post some of the more interesting neural miscommunications as they come up. If I don't post for a while, maybe I'm feeling normal -- whatever that is...
Sunday, October 10, 2021
Tuesday, August 17, 2021
Oooooph...
Wow, I have not been a good blogger...
The summer has been fairly eventful, health wise, but I haven't said anything. Sorry.
I've been developing arthritis in my left knee, and now it's starting in the right one. I've been developing tendonitis in my right ankle, and then the left one started catching up. And my right shoulder has something going on. It feels like the pain from when I got my vaccinations, but that doesn't make any sense, does it?
At the moment, my nervous system is telling me that I have six broken toes. Four in my left foot, two in the right. That's not unusual. The weird part is that my nervous system is telling me that I have three unbroken toes in my left foot along with the four broken ones -- and only a total of three toes in the right one. When I look at them, it's two out of five 'broken' in the left and one out of five 'broken' in the right. I think I like those numbers better, so don't be surprised if I'm staring at my feet for the next while...
Wednesday, May 19, 2021
Scary Headline?
Okay, so I saw this headline as a TedTalk title:
What investigating neural pathways can reveal about mental health
Thursday, April 22, 2021
Vaccination Relation?
So, it was weird...
I had one of the seizures where my right arm locks up. It was more painful than usual, and the hand was in the claw-like position, not curled up into a ball. It was hurting for 20-30 minutes, a bit longer than usual. Then the pain drifted up my arm, and settled right about where my vaccination spot was. It stayed there for several hours, fading a little after about an hour. It's still a little sore two days later.
Told you it was weird.
Tuesday, March 9, 2021
Monday, February 22, 2021
Vaccination Revelation
Yep. Welcome to 2021.
So, got my first round. I got the Pfizer one. That day, a little sore. That night, a little sore. Next day, a little sore. Next night?
HOLY MOLEY!
It felt like a sledgehammer had been used to knock the stuff into me.
I spent four hours in misery. There was no way I could possibly put anything on the site. I took Advil (don't do that before your vaccinations, but it's okay after!) almost immediately, but it wasn't enough. There was no way I could have anything even touching the area, even clothing.
Then I got smart about four hours into this. I still had some spray-on IcyHot for when I broke my ribs. I went to town. And it actually brought it down to medium pain!
Moral of the story? Make sure I'm stocked up on spray-on pain relievers before the second round!
Saturday, January 16, 2021
Warning -- this one is pretty gross...
You have been warned!
My left arm got ripped out of its socket, and all the muscles got torn up in the process. It is gushing blood. Okay, typical day in the fibrohood. This time there is one difference. Usually when a body part is detached or missing, when I look at it, it returns to place. Then when I look away, it's gone again. So, any time I need a reminder that it's actually still there, I just look at it. Twenty years of this routine, it's ingrained.
Today's exercise in fibrocity, no such luck. I look at my shoulder, and can clearly see that it's where it's supposed to be, and there is no blood visible. But it still feels like it was violently removed and is not there. I still feel the 'waterworks' of blood. Staring right at it, even operating it, the fibro sensations are still 100%.
I can't decide whether to be fascinated by it, or to crawl back into bed in hopes that it goes away...