One of my least favorite conditions to be in, GCS. Yes, Gyllenhaal Chili's Syndrome has me under its control again.
What is GCS, you ask? Brokeback Baby Back Ribs. Every rib (or a large majority of them) feels broken. Breathing, no fun. The only position that is remotely comfortable involves being on my back, with the upper back slightly curved up onto a couple of pillows. Unfortunately, I am a side sleeper. So, I can stay awake but make the pain mellower, or I can try to sleep and hurt.
Decisions, decisions...
Saturday, January 30, 2016
Tuesday, January 5, 2016
Am I Improving? And if So, at What?
Yeah, trick question...
It was yet another day of not knowing how to operate my legs when I woke up. No biggie, that happens 3-4 days per week. Still made it to the bathroom and back. Still got dressed. Still made it down the stairs. Got the dogs fed and let them out. Packed my lunch, got both dogs settled in for their day, got out to the garage -- legs still not obeying commands.
So, what to do? Well, duh, drive to work. And I did. I had to manually operate the right leg a few times to get the gas pedal to react, but I did, whatever. Got to the parking lot at work. Could not for the life of me figure out how to get my legs out of the Jeep on their own, so the arms had to lift them, okay. Walked over the icy patches of the lot, still confused about what commands would make the legs function, sure.
Did any of the kids notice how much of the day was spent leaning on things while I walked around the classroom? I don't think so. One coworker gave a quick reaction to the way that I lifted myself down to the chair at a meeting, but I guess it wasn't even enough of a concern to ask how I was doing.
Only had to lift the right leg into the Jeep; the left one was doing it all by itself! Woo-hoo! And the right one was cool with driving. Resisted the temptation to lift it out when I was safely parked in the garage, made that bad boy lift itself, and the second try worked.
An entire work day with the legs not working properly, and no one noticed, other than possibly the one coworker? I must gots mad skillz...
It was yet another day of not knowing how to operate my legs when I woke up. No biggie, that happens 3-4 days per week. Still made it to the bathroom and back. Still got dressed. Still made it down the stairs. Got the dogs fed and let them out. Packed my lunch, got both dogs settled in for their day, got out to the garage -- legs still not obeying commands.
So, what to do? Well, duh, drive to work. And I did. I had to manually operate the right leg a few times to get the gas pedal to react, but I did, whatever. Got to the parking lot at work. Could not for the life of me figure out how to get my legs out of the Jeep on their own, so the arms had to lift them, okay. Walked over the icy patches of the lot, still confused about what commands would make the legs function, sure.
Did any of the kids notice how much of the day was spent leaning on things while I walked around the classroom? I don't think so. One coworker gave a quick reaction to the way that I lifted myself down to the chair at a meeting, but I guess it wasn't even enough of a concern to ask how I was doing.
Only had to lift the right leg into the Jeep; the left one was doing it all by itself! Woo-hoo! And the right one was cool with driving. Resisted the temptation to lift it out when I was safely parked in the garage, made that bad boy lift itself, and the second try worked.
An entire work day with the legs not working properly, and no one noticed, other than possibly the one coworker? I must gots mad skillz...
Monday, December 21, 2015
Gripe, Gripe, Grumble, Grumble, Moan, Moan, Moan!
Okay, now that I got that out of my system, I feel better!
Monday, December 7, 2015
Grrrrr....
I hate, hate, hate chronic fatigue syndrome. Absolutely hate it. With a passion.
That's all I got.
That's all I got.
Tuesday, November 17, 2015
Not Funny, Sorry...
Just posting.
Lots of broken bones, generally multiple ones at any given moment. The calves, quite a bit, and those are unusual ones.
That, and seizures, of course. A normal number of the 'traditional' ones, and several of the newer style, which I can't remember if I've described them or not. It's like one of my arms -- more often the right one, but can be either -- is imitating a fiddlehead fern. It curls up and gets very tight, locked in that position. It generally stays there for 2-3 minutes. Then it releases, but feels like I've been lifting weights for half an hour or so. And it can take that long to stop hurting. I'm not too fond of this type. Interestingly enough, I seem to be good at hiding theses too -- no kids have ever asked. Remember, I work with middle schoolers, no filters...
So, yeah, there's the update. But Kodiak is loving the snow!
Lots of broken bones, generally multiple ones at any given moment. The calves, quite a bit, and those are unusual ones.
That, and seizures, of course. A normal number of the 'traditional' ones, and several of the newer style, which I can't remember if I've described them or not. It's like one of my arms -- more often the right one, but can be either -- is imitating a fiddlehead fern. It curls up and gets very tight, locked in that position. It generally stays there for 2-3 minutes. Then it releases, but feels like I've been lifting weights for half an hour or so. And it can take that long to stop hurting. I'm not too fond of this type. Interestingly enough, I seem to be good at hiding theses too -- no kids have ever asked. Remember, I work with middle schoolers, no filters...
So, yeah, there's the update. But Kodiak is loving the snow!
Saturday, October 31, 2015
And the Sense of Humor is BACK!!!
hehehe... Fibro so funny!
So I just woke up from a dream. It was not the main feature, it was just one of the commercials. It was a commercial for 'Seizure City', hosted by a Cal Worthington type.
"Lookin' fer that special somethin'? Come on down to Seizure City! We got the cute, little seizures. We got the classic mid-range seizures. And fer those o' you in the market fer serious, we got the super-deluxe mega-seizures, plenty on the lot right now. Come on down!"
You can guess which type I woke up with...
--J;o)
So I just woke up from a dream. It was not the main feature, it was just one of the commercials. It was a commercial for 'Seizure City', hosted by a Cal Worthington type.
"Lookin' fer that special somethin'? Come on down to Seizure City! We got the cute, little seizures. We got the classic mid-range seizures. And fer those o' you in the market fer serious, we got the super-deluxe mega-seizures, plenty on the lot right now. Come on down!"
You can guess which type I woke up with...
--J;o)
Friday, September 4, 2015
Another One of Those Days...
Yeah, no humor, sorry.
Sucky day. Seizures of the painful variety most of the work day. It's great that I work in such a supportive environment. I know I could have left any time I really needed to. But I didn't have to leave. I made it through. Hip, hip... yeah...
Sucky day. Seizures of the painful variety most of the work day. It's great that I work in such a supportive environment. I know I could have left any time I really needed to. But I didn't have to leave. I made it through. Hip, hip... yeah...
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