I Apologize!

If any of you thought that was a long earthquake with several tremors on either side, sorry! It was just one of the biggest sets of seizures I've ever had. I was actually wondering if I was shaking the whole house -- and my house is built really well.

Two videos on a shelf about five feet from me fell sideways -- not off the shelf, just leaning against the next shelving unit -- but that appears to be the extent of the Jack-quake's 'damage', thank goodness!

Improvements?

Not sure... 

Having some bad days, as usual, but having a few that are almost not bad. Still plenty of chronic fatigue times, and plenty of broken bones, but some days when they are minimal. I'm not used to minimal.

Is it a coincidence that work is going really well? 

Mixed Up Day...

Today I could not regulate my temperature at all. That and some pain was about it.

Tonight, seizure things and muscle cramps -- both of which can make sleep interesting. 

We shall see what tomorrow brings...

A Fair Trade?

Today has been (and continues to be) interesting.

I slept better yesterday afternoon and last night than I have in a week. and the pain levels have been pretty low -- and virtually no chronic fatigue syndrome effects! However, today has been a major one for tremor/seizure things.

I think I can deal with this! Now I just need to know how to keep it going... 

Happy New Year?

Wow...

So, yesterday my thighs were sore just from all the walking, etc., of the day. Then I was sitting and my right leg started seizing/spasming like crazy. As it was shaking, it was also shattering more and more. By the end of the seizing, it was made up of thousands of shards, and I could not touch it without it being incredibly painful. I could not even let my other leg touch it. And this continued all night... I had to have a body pillow on either side of my right leg all night long. 

Today? It's just back to sore. So weird...

No Fun, but Yes Funky

Okay, this is kind of new... 

Today I am pulling muscles right and left. A good yawn and I pulled several in my back and neck. Picking up a pen, I pulled muscles in my hand. Seriously, my hand -- who does that? Standing up from a chair tore up my lower back like crazy. And a few minutes later, they are no longer pulled, for the most part. 

That's all. 

Not for the Squeamish...

You've been warned!

So, last night, there I was, minding my own business, sitting on the couch... when a grenade went off inside of me. From what I could tell, it was sitting about 2-3 inches below my ribcage on my left side. It mostly blew forward, leaving a pretty big gaping hole in front and something about the size of a fifty cent piece in back. 

Yes, I immediately looked to see if it was real. No, it wasn't real. But of course every time I looked away it became real again. I tried leaving my hand on it, but to no avail; it was real a few moments after I'd look away, even with the hand there.

Do I win the title of your strangest friend yet?