Long Time No...

Yeah, I haven't been posting in here. I've been much more open about my seizures, etc., in Facebook. And since I have no idea if anyone reads this, Facebook seems like a more productive platform. But we'll see. I'm not getting rid of this yet.

Little Giggles

Nothing major has happened since the Grand Mal at school. But there have been a few amusing things.

I had one that was just my shoulder. The whole time it was happening, I kept thinking how funny it would have been if it had been in public. Anyone looking at me would have thought I was trying very poorly to flirt with them. Try it in a mirror, you'll see what I mean.

I also had a seizure while taking an Epsom salts bath. I like to think that the result was pretty close to what a jetted tub would feel like. So I felt a little bit rich.

Well, it was Bound to Happen…

On Friday, I had a Grand Mal seizure at school for the first time. I spend enough hours there, the odds were ever in favor of it occurring. I had a loose plan of action set up, and it was carried out well. I managed to get out of the classroom, get my class covered, and get to a room that didn’t have any students in it. Lucky for me, one of my best friends was on his planning period, so he was able to help guide me out of it. Unfortunately, I did a good amount of bouncing on the floor, which is not very well padded. I definitely ended up with some bruised ribs.

The school nurse ended up covering my class. She didn’t quite understand why she was doing that and the teacher was helping me but I think I was able to explain it to her. And she took it all in stride. And my friend had seen my seizures before, but never one that big or all-consuming. Because I never lose the ability to communicate during them, I was able to talk him through everything. And he did a wonderful job.

I’m really kind of lucky, you know?

Weird/Funny

 OK, so my right leg has been getting longer for the last hour. Just the right one. I sat down for a while, and when I got up, I couldn’t figure out how to walk without turning… I can look at my legs and see that they are the same length, but when I’m not looking, the right one is about 5 inches longer than the left now. I can barely walk from the movie room to the kitchen without hitting the wall several times. Not even going to attempt to get a beverage…

Ooooops

My bad. 

I keep waiting for something funny to happen. Nothing really good since the 'lady' in the grocery store. 

Lots of seizures. I had bilateral "fiddle head ferns" happen for the first time. Woo-hoo. 

Just trying to get through, ya know?

Tonight's Post from Facebook, Word for Word:

 

I was going back and forth as to whether I should post this story, but then I realized that it points out the huge need for more knowledge and understanding, so... here goes.

For those who didn't know this, I have a seizure disorder. I have 15-40 seizures per day, mostly so small that I can hide them. Well, I was shopping at Fred Meyer, and a pretty strong one came on, just in my right arm -- not unusual. So I let it happen and kept shopping. This woman came charging up to me, looking like she was going to blow a gasket. I was just about to explain to her that I was fine, nothing to worry about, when she said, "You shouldn't be doing that, moving like that! It looks like you are imitating a seizure, and someone with epilepsy could see it and think you were making fun of them! Just stop it!"

I stared at her for a moment, not moving other than my arm. Then I busted out laughing. Maybe not the best reaction, but that was what came out. She did not like that. "This isn't funny! I should have you kicked out of the store! This isn't funny at all!" The best I could come up with was, well, yes, it was indeed funny that she would walk up to someone who was having an epileptic incident and say something like that. Yeah, that didn't go over too well either. "You're not epileptic -- you're not foaming at the mouth!" Yeah, more laughing and more seizing.

An employee came up to us and asked if something was wrong. The woman again accused me of making fun of epileptics by "pretending to wiggle" (huh?). He looked at my arm, then looked at her and said, "My sister is epileptic. She has unilateral limb seizures just like that all the time. This is real." She looked at him with her mouth open, then looked at me, then back at him and said, "Oh, so you are in on this too? You're both in on this?" After a beat, he and I both started laughing. "Well, I never!" and she stormed out.

I offered to help him put her groceries away. He said, "No sweat. Totally worth it. This story is going to have my sister in stitches."

Meh...

Nothing much to talk about. Some strange seizures, but not that strange. Some unusual pains, but nothing terribly unusual. On my third foster dog, who I thought would be adopted quickly, but he's been with us over a month now. Summer show went well, school has started. I'm keeping the weight sort of down. 

I guess a lack of excitement is a good thing.